Differences of Sex Development (DSD) are a group of rare conditions where the development of chromosomes, reproductive organs, or hormone levels differs from what is typically expected. In the UK, a baby is born with one of the 40+ DSD conditions every three days.
For families receiving a DSD diagnosis, the experience can be confusing, overwhelming, and isolating. There is often a lack of accessible, trustworthy information and very few opportunities to connect with others going through the same journey. Research shows that parents of children with DSD conditions are at heightened risk of stress, anxiety, and depression – comparable to those raising children with other chronic health conditions. The unique need for privacy associated with DSD can intensify feelings of isolation and uncertainty.
DSD Families was founded in 2011 by two parents searching for answers. Since then, it has grown into a vital national charity offering expert-led resources, peer support, educational workshops, and a youth programme – all shaped by the lived experience of its trustees, staff, and volunteers.
The charity provides a trusted, compassionate space where families can access both peer and professional support, including psychologists with expertise in this area. Children benefit from opportunities to meet others with similar experiences, helping them build confidence and resilience, while parents gain reassurance and practical strategies for navigating the road ahead.
Funding from the John Good Group will help DSD Families grow their peer-support network and launch their new parenting workshops. With a focus on both peer and psychosocial support, the workshops will include skills training, practical exercises, and role modelling. They will provide a safe setting where parents and young people can share their experiences, connect with others, and build confidence for the journey ahead.
This recognition means so much. We work tirelessly to ensure that no family feels isolated or unsupported after a diagnosis. This funding will improve care pathways for those navigating these complex conditions. Knowing that the John Good Group is taking the time to learn about our work is truly heartwarming. Thank you for considering our cause and giving us the opportunity to share our mission.
I am deeply impressed by the dedication shown by everyone involved with DSD Families. Many bring lived experience of Differences of Sex Development, either personally or through their families, which creates a compassionate, informed environment that truly understands the challenges faced. Despite the difficulties of supporting a loved one with a stigmatised condition, their determination to help others is genuinely admirable. The Trustee board has recently completed a skills audit, demonstrating that the charity is well-positioned for the future. With strong foundations in place, DSD Families is poised to enter its tenth year with confidence and resilience.
Latest Project Updates
June 2025
Granted £2,500
After employees at the John Good Group voted for their favourite causes, DSD Families received a grant of £2,500.
June 2025
Grants for Good Finalist
DSD Families has become one of the top five finalists in the latest Grants for Good round, and will receive a grant between £2000 and £5000 after employees at the John Good Group have voted on their favourite causes.